10 March 2014
A team of Senior Lecturers from Canterbury Christ Church University have been awarded a research grant for an 18 month research project into how improvements can be made to help patients living with Haemophilia effectively self-administer their medication
The AnTHem Trial is the first time this experiment has been attempted in haemophilia, and it will be one of the largest studies focused on nursing in the disorder.
Haemophilia is a rare genetic disorder that affects the ability of the blood to clot. The consequences of this disorder can be life threatening.
Currently, males living with Haemophilia can be faced with many barriers that discourage them from taking their medication, these include: personal beliefs, phobias and physical impediments. The management of Haemophilia is done through regular injections into the patient’s veins which are usually self-administered by the patient themselves, which can also prompt further difficulties. When patients do not take their medications they are at increased risk from serious bleeds which can be disabling and sometimes fatal.
The research grant from Pfizer Ltd. will be used to determine the effects of Adherence Therapy for patients living with Haemophilia. Nurses will be trained to provide support to patients that will help them to get into an effective routine and in some cases conquer their reservations around self-administering their medication.
Martin Bedford, Sabina Hulbert, Dan Bressington
The team consists of a mixture of expertise across the University who have a specific understanding of Haemophilia and treatment adherence. Martin Bedford, Senior Lecturer in Nursing and Applied Clinical Studies, Dr Daniel Bressington, Senior Lecturer in Health, Wellbeing and Family and Dr Sabina Hulbert, Senior Lecturer in Applied Social Science make up the team and all bring different expert knowledge and qualities to the research.
Martin Bedford, previously a clinical nurse specialist in haemophilia care said; “I am delighted that Pfizer have been so generous and helpful in supporting this research.
“The University has had a long involvement with Haemophilia nursing, having set up and run the first haemophilia nurses course since 1999. This grant will allow the University to help demonstrate how innovative nursing can make a significant difference to the health outcomes of people living with haemophilia.”
The research project will use a method known as nurse led Adherence Therapy, previously shown to be effective in conditions including Schizophrenia and Hypertension. Adherence Therapy was devised by Prof Richard Gray of the University of the West of England who is an external consultant to the project. The research will use a cluster randomised controlled trial design where nurses from half of 10 national haemophilia treatment centres will be trained to deliver Adherence Therapy. The other half will provide treatment as usual and the patient-outcomes will be compared between the two groups.
This type of testing will explore whether having the support and help of nurses, for patients living with Haemophilia can help to maximise the potential effects of treatment and therefore reduce the number of patients who encounter bleeding episodes.
Notes to Editor
Canterbury Christ Church University
Canterbury Christ Church University is a modern university with a particular strength in higher education for the public services.
With nearly 20,000 students across Kent and Medway, its courses span a wide range of academic and professional subject areas.
- 94% of our most recent UK graduates were in employment or further studies six months after completing their studies*.
- We are the number one choice for local people looking to study at university in Kent (2012 UCAS).
- We are one of the South East’s largest providers of education, training and skills leading to public service careers.
*2011/12 Destination of Leavers from Higher Education survey